Leahs visit with Dr. Havlik

Well we finally had a follow up appoinment for Leah to re-evaluate her cranio. We actually changed Neurosurgeons and had an appointment only with the craniofacial surgeon. The gist of the meeting- Leah is borderline mild. He wants to re-evaluate her again in 6 mos and have Dr. Smith give her opinion on her appointment in April. He seemed shocked to hear that Bob was also metopic. It was an improvement that HE actually listened. I explained (somewhat) our reasons for not pursuing surgery for Lily and that we are not open to CVR for Leah either. He was respectful however encouraged us to follow up with Dr. Smith if we were not pleased with Ackerman. I continue to feel confident that our decision not to have the CVR is the right one- but now that we are through that process I still want her to be followed by someone. We are considering Cincinnati- at least I am- I find comfort in the multitude of opinions - Bob is quietly annoyed I think. We are in agreement that we will continue to work to find the right path for our beautiful little boneheads.